I know I havent been regular about updating this thing and am going to try to update it alot more as the boys are growing so fast. We see the GI for Lincoln today as his reflux has gotten really bad and his feeding has gotten worse. His weight has gotten to where he keeps losing weight and its become a major concern. Hopefully we will have more answers to what caused the sudden onset of this reflux.

Pierce is still in the NICU but we got some good news this week about his lungs. They are healing slowly and showed less scaring on the x-ray. He is so close to pulling the vent out and at that point they will see how he does on CPAP but we arent expecting him to stay on it but its worth the try.

I am scared they will rush into traching him when he may not need it at all. He still might need it but the thought really scares me. I am unsure about home nursing as I want to be the one taking care of my boys not some stranger I have never met before. But i really just want my baby home.

His feedings are going well and it looks like he will be off TPN in the next month. That will be a huge accomplishment for him. And if all continues to go well with feedings they will do the reconnection surgery.

We are getting there one step at a time

Off to the ER

We have dealt with some sever reflux over the past 3 days which is not getting any better. Lincoln is projectile vomiting everywhere and it is affecting his breathing now. He is having way to many apnea and bradys and I cant get his sats above 70.